My daughter was just diagnosed on September 8th, 2006. She is now 16 months old. (15 months at DX).

I think what you are doing it just wonderful. I find myself thinking of what I will be able to do to help in finding a cure.
I know we are just starting at the beginning of our journey, and I thank you for your wonderful website. It helps those of us that are just at the start of this journey. It is an awful game of hurry up and wait.

The biopsy did show the tumor to be pure fetal histology. So we thought we could avoid chemo all together, but after much thought we decided along with the help of quite a few doctors and surgeons that we would try to do some chemo to shrink the tumor.

Lindsey was diagnosed with Stage III when it was decided that chemo would be the safest route at this time due to the size of the tumor. Lindsey's first round of chemo was on October 2. She had an allergic reaction and the chemo had to be stopped. She received a full dose of Vincristine and 5FU. This left us feeling like we were back at the beginning. We had a few options, we could try the Cisplatin again (Since we were not sure if the reaction came from the cisplatin or the anti nausea meds), we could search for a surgeon that would be willing to remove this size tumor, or we could try a different chemo drug. Well our doctor spoke with quite a few other doctors and it seems that the general consensus is to try the Cisplatin again.

The good news is that the little chemo that she did receive seems to be working. Her AFP dropped from 208,000 to 103,000. We feel this is good news. Lindsey will have her next round of chemo on October 23rd, 2006. This will be her first full round. We pray that she has no allergic reaction, as the 2nd reaction could be far worse than the first. Lindsey will be in the ICU for her chemo just so they can watch her very close.

Thank you again for all that you are doing! You are wonderful.

For more information on Lindsey Ann, please visit
www.lindseyann.net